Friday, April 17, 2009

Clinical Remission

Today we went to Children's to see Dr. Spencer about Lucy's JRA. It was just a check-up but the great news is that he thinks she is almost in clinical remission. Clinical remission means that with meds there would be no signs of her JRA. YEAH! He is hoping that this summer she will be free of signs. He feels that since she is doing so well and it hasn't spread to other joints that she has a good chance of growing out of it.

Right now she gets a shot twice a week. She is taking Enbrel. It has worked well for her but we hate that fact that we have to give her such a powerful drug. Once she reaches clinical remission then the next step is remission. That means we can start cutting back the meds.

She has made such progress with Enbrel. She is running more smoothly and jumping with two feet. I almost forgot that we used to get asked daily why she walked funny. That never happens anymore. I'm sure her Sure Steps have helped too.

I was a good visit today, minus the waiting. Dr. Spencer is so personable. Kevin has a friend who is studying to be a chaplain and he stopped by while we were waiting. The doctor walked in the room and told us he would just be a couple more minutes. Then he introduced himself to Rob. Rob said that in his 11 weeks at the hospital he is only the second doctor to introduce himself.


Jennifer said...

Great news! Congratulations!

Wendy said...

Great news Mandy!

Jess said...

That is AWESOME! I'm so happy that with this medicine she doesn't get sick like she used to. God is so good!

Anonymous said...

This is great news! I really appreciate a knowledgeable and personable doctor. It seems they are somewhat rare. I noticed a big difference in Lucy's running and that she even tried to jump, well that is just awesome.

We love you, sunshine. You and your little brothers really light up Grammy and Grandpa's lives