Wednesday, July 28, 2010


It really is my goal to post once a week but since I've failed there I'll just give a little summary of what we've been doing.

Last weekend we had a garage sale. I spent the beginning of the week cleaning out closets, under beds and in the attic. We had a room full of things to sale. It was time to let go of all of the baby stuff. I was only planning on having the sale on Saturday but when I saw my mounds of stuff I decided to extend it to Friday. I didn't want to bring any of it home. I tried to price the clothes very cheap so people would buy a lot. They did. Many walked away with a garbage bag full. There were moments that my heart hurt as I saw a little outfit go. They were buying some sweet memories. I saved just a few of my favorites and rested in the fact that we would make more memories.

Yesterday we made a trip to Children's for a rheumatology check up. The doctor was very pleased to see that Lucy is still having no signs of the JRA since we have decreased her meds. We were able to bring her dosage down even more. A few months ago we started at .3 and we are down to .15. We continue to pray that the JRA will continue to stay away and that we can get her off these meds. Thank you Grandma for watching Simon and Ian during our appointment.

In the evening we attempted to attend the Buddy Walk kick off meeting. It was not very successful. The kids were not up for sitting and listening. I know at some point in time things will start to get easier. We aren't there yet. Right now everything we do is so much work. We should have known better.

Today we have no appointments or places to be. Hopefully it will stay that way.

Today's goal... Get Buddy Walk "stuff" rolling.

Friday, July 09, 2010

Summer Speech

We started summer speech this week. We decided that we could just do Joanne and speech this summer. Lucy is working with a different therapist than she does during the school year. This would make for a grand total of 7 different speech therapist she has had. Each has their "way" of working with her. Each brings their strengths and knowledge into her sessions. Two therapist ago I mention how I own the Talk Tools whistles and if she wants I could bring them in. She says she doesn't think that is what Lucy needs. (strengthening)

So we start with therapy this week and what does Lucy do on day one, a whistle. I tell the therapist that I have the whistles and she ask for them and says that's what they will be working on. Our homework, eating applesauce and pudding with a straw and to practice the whistle. (strengthening)
As I said... each brings their strengths and knowledge into her sessions.

All of this makes me realize, once again, how responsible I need to be for Lucy's education. You would think that as kids moved from one therapist to the next that the therapist would communicate. That hasn't happened for us. One writes the goal with our input but the next one interprets it differently than intended. It's our job to keep things connected for her. We are the constant.

Thursday, July 01, 2010

Children's Garden

Simon getting his "tickets" for the train.

Another beautiful day calls for another outing. Today it was lunch at the Children's Garden here in Mount Vernon. It's such a beautiful place. The only difficult part was keeping track of all three of the kids. They all seemed to want to go in different directions. We made it work though. A successful outing!