This week mom and dad found me a new doctor. It was an answer to prayer. This doctor actually has two boys with down syndrome and is on the national committee that makes the medical guidelines for kids with down syndrome. One of the biggest frustrations we have found over the last three years is that no one specializes in down syndrome, at best it is just a very small part of their practice. So when we went to see this doctor, mom and dad were thrilled to talk to someone who knew more than anyone we ever talked to be before. He gave us so much good advice.
We also got my latest blood results back and I'm not anemic anymore!!!
We are also heading out soon for our first Down Syndrome National Convention. We are all really excited about it!
Beef with Broccoli
2 weeks ago
